Let's take a minute to talk about your medication.

This is Spinraza. It helps treat spinal muscular atrophy. Spinraza may help improve movement. It can be used in both children and adults.  

Spinraza is given as an injection in the lower back near the spine. You may also hear it called an 'Intrathecal injection'.  Spinraza is given every two weeks for the first 3 doses. Then, a fourth dose is given 4 weeks later. After the first four doses, Spinraza is given once every 4 months. 

Before each dose, the doctor may prescribe another medicine to help you or your child relax. The appointment may take a while, but the dose will only take a few minutes. Your doctor will talk to you about which symptoms to expect after an intrathecal injection, such as a headache or back pain.

Most people tolerate Spinraza well, but some side effects can occur. This includes respiratory infections such as the common cold and pneumonia. You should let your doctor know if you notice any symptoms of these, such as a fever, cough, nasal congestion or a sore throat. This medicine can also cause constipation. If these or other side effects become reasons you want to stop taking this medicine, please talk to your doctor or pharmacist. 

As with any medicine, more serious side effects can occur. With Spinraza, this includes possible kidney problems. To watch for this, the doctor will order blood and urine tests. This medicine could also increase the risk of bleeding. You should watch for any bleeding that is unexpected and call the doctor right away if it occurs.   

For best results with Spinraza, work closely with the doctor to understand the benefits and risks. Also, ask about helpful support services for patients that are available.